Chicagoland ITP Support was founded in 2007 by 2 local ITP patients who saw the need for a local support group. Within a year, one of the founders had to step out because of familial responsibilities and time restraints, and the torch has been carried ever since by Trish S.
Trish is a PDSA member, and also part of their Circle of Hope. She was diagnosed with ITP in 2002 and has tried many different treatments since then, with the most recent (and most successful) being Promacta. She was part of the 'Inside Stories' book and video about ITP patients back in 2007, and spoke at the PDSA Conference in New Jersey about her story.
Since diagnosis, Trish's dream has been to spread awareness and help others who are newly diagnosed with ITP realize that while it may seem like the end of the world at the time, it's not - and provide a place for those people to meet others that 'get' it and share stories and be there for each other.
Here are some relevant links that we'd like to share:
For all things ITP, visit the website for the organization that we stand for - and what brought us all together - the Platelet Disorder Support Association.
aWEARness shop. Get your 'got platelets?' merchandise here. All created by our founder, Trish, the proceeds go towards our meetings and other ancillary items for the group. Any extra funds will be donated to the PDSA.
A Birmingham, Alabama organization created in honor of a 7 year old girl who died from complications of ITP, Casey’s Cause has four main mission areas: honoring Casey’s life by sharing her story, raising ITP awareness, education the public and medical professionals about ITP, and assisting in ITP research efforts.
ITP Support Association of the United Kingdom. Basically the PDSA, but across the pond!